Twitter Highlights from Day 1 of HUGO GELS 2009 Symposium

November 2, 2009 · Posted in HUGO Events

Day 1 of the 2009 HUGO Symposium on Genomics and Ethics, Law and Society has concluded. Aside from the excellent presentations and engaging discussions that followed, we also had an active Twitter feed @humangenomeorg with live tweets from HUGO President Prof. Edison Liu and 23andMe co-founder, healthcare activist Linda Avey. Here are some Twitter highlights from day 1. For more, follow the hashtag #GELS09.

@mrgunn: @kshameer Me too. GELS is fascinating – can genetic data be anonymized & if not how do we share data?

@lindaavey Technological answers to access/privacy issues. Barth Knoppers trusts the public. Amen!

@liuedison: #GELS09. Knoppers – need to regulate malicious data use rather than to regulate databases

@lindaavey: Barth Knoppers Answers to data access/privacy issues best not to come from the political realm

@liuedison: #GELS09.Genetic protection laws except in the absence of universal health care are not a good way to go.

@lindaavey: Privacy barriers coming down as extension of personal autonomy, zone of freedom individually determined #GELS09 Bartha Knoppers

@liuedison: #GELS09.Linda Avey concerned about data standards in DTC reports.Suggests org like HUGO may want to help dev standards

@liuedison: #GELS09. DTC genetics is challenged as too simplistic.Response: companies work to be clear and public wants this information

@liuedison: #GELS09. Open consent is challenged – because it sounds like it is revealing all possibilities.

@liuedison: #GELS09.Lunshof – Is there more privacy through sharing?

@liuedison #GELS09. Privacy is based on context-relative norms.is the information in a medical context or friendship context?

@liuedison: #GELS09. Privacy affected by revelations of 3rd persons. writing in blogs about friends. Genetic info is also about relatives

@liuedison: #GELS09. Challenges to privacy #3: New exhibitionism – physical (tattoos), blogs, twitter,reality TV

@liuedison: #GELS09. Challenges to privacy #2: Side effects of new technologies – mobile phones, GPS, forensic & genetic databases…

@liuedison: #GELS09 Ruth Chadwick tells that there are three challenges to privacy: 1) intentional from corporations and governments….

@liuedison: #GELS09. Dev countries have special challenges that need their own tech solutions-Avoid blind adoption of 1st world protocols

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